What Does An Eds Flare Up Feel Like?

Extreme pain in my joints, a low-grade temperature, and subluxations in my fingers and other joints characterize what I refer to as a ″flare up″ of my Ehlers-Danlos syndrome. You are really here to watch one of the worst flares I’ve ever experienced since I was first diagnosed with this condition.

What is it like to have eds flare-ups?

The suffering comes next. When you have EDS or dysautonomia, even the simplest of tasks can be excruciatingly difficult, but a flare-up brings its own unique brand of excruciating pain. It causes discomfort that makes me feel as though my joints are being crushed, burnt, and torn apart all at the same time.

What are the symptoms of EDS in women?

2.″ Problems with the gastrointestinal tract, such as bloating, diarrhea, constipation, trouble absorbing nutrition, nausea, acid reflux, etc. People are constantly shocked by these symptoms (including myself!), but EDS may also impact your organs, as well as your bladder and bowel motions. People are always astonished by the symptoms of EDS.

What are the symptoms of Ehlers-Danlos syndrome?

  1. Although there are 13 variants of Ehlers-Danlos syndrome, the hypermobile subtype is by far the most prevalent form of the condition.
  2. Your symptoms will vary depending on which subtype you have of EDS; however, the majority of people who have this condition have overly flexible joints, frequent partial or full joint dislocations while engaging in activities of daily living, stretchy or fragile skin, easy bruising, and persistent pain.

How does eds affect your daily life?

  1. When you have EDS, it’s possible that your joints will function in a different way from those of your usual peers.
  2. As a consequence of this, you might need to modify some activities to accommodate your body.
  3. Consider the act of holding a pencil, for instance.

If you are prone to dislocations and endure chronic discomfort in your hands, learning the same grip as your peers in primary school can be quite uncomfortable.

How would you describe EDS pain?

  1. It is highly typical for people with Ehlers–Danlos syndromes, particularly those with hypermobile EDS, to have chronic pain, and this discomfort can be quite severe.
  2. It is possible for it to be localized to a single part of the body, such as a limb, or it may extend across the entire body.
  3. Pain in the joints, muscles, and nerves, along with headaches and gastrointestinal distress, are all possible side effects.
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Can Ehlers Danlos be triggered?

Although EDS is something that is present at birth, symptoms may not become apparent until much later in a person’s life. It is fairly unusual for the symptoms of a hereditary disorder to become visible for the first time during adolescence. On the other hand, symptoms can be triggered by a stress, such as a virus, many years after the problem has already manifested itself.

Does EDS have flares?

  1. Patients with hEDS and HSD typically use the term ″Flare″ to refer to an increase in symptoms related to any aspect of the syndrome, including but not limited to: pain, gastrointestinal distress, MCAS reactions, dislocations, subluxations, cardiovascular challenges, dysautonomia symptoms, insomnia, fatigue, brain fog, a sense of being ″wiggly″ or unsteady, or any combination of these and other symptoms.

What causes hypermobility to flare up?

Joint hypermobility is frequently a genetic condition (runs in families). It is believed that genetic variations might produce alterations to collagen, which is a kind of protein. This is regarded to be one of the primary reasons.

How do you relieve EDS pain?

Strategies for the management of persistent pain

  1. Medications, including but not limited to muscle relaxants and opioids
  2. Physiotherapy and occupational therapy
  3. Occupational therapy
  4. Acupuncture
  5. Cognitive-behavioral treatment
  6. [also known as] [CBT]
  7. Meditation and more non-aggressive forms of martial arts like Tai Chi

Do muscle relaxers help Ehlers-Danlos syndrome?

  1. The use of muscle relaxants like baclofen, which can be beneficial for painful muscle spasms, is discouraged for everyday usage due to the potential risk of increasing joint instability and, as a result, aggravating discomfort.
  2. However, muscle relaxants like baclofen can be helpful for painful muscle spasms.
  3. There is currently no evidence to support the use of marijuana for medicinal purposes in the treatment of EDS patients.
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Is anxiety a symptom of EDS?

  1. Conditions Related to Anxiety and EDS Patients diagnosed with EDS had a significantly increased risk of developing anxiety (35–37).
  2. Recent study and meta-analysis (38–40) have indicated that individuals with hEDS are more likely to suffer from panic disorder, which is similar to EDS; however, other studies have identified a distinct correlation between the two conditions (41).
  3. According to the findings of Pasquini et al.

Does stress make hEDS worse?

It has been demonstrated that having negative emotions might make one feel the pain more intensely, which is concerning given the prevalence of high levels of anxiety and despair in JHS and hEDS.

Does Ehlers-Danlos show up on MRI?

Imaging techniques such as X-rays, computed tomography (CT), and magnetic resonance imaging (MRI) can, in addition to a physical examination, skin biopsies, and genetic testing, aid to confirm a diagnosis of Ehlers-Danlos syndrome (EDS).

Why does EDS cause so much pain?

Patients who have EDS lose some of their awareness of where their joints should be, which results in a misalignment of the body’s skeletal structure. And this is a significant contributor to their discomfort.

Does Ehlers-Danlos qualify for disability?

Ehlers-Danlos Syndrome and the application for disability benefits from Social Security. Ehlers-Danlos syndrome is one of the uncommon genetic disorders that does not have a listing in the Blue Book. In spite of this, there is a chance that you might still be eligible for benefits if you can match a listing related with your particular symptoms or limitations.

Does EDS cause inflammation?

Management by a rheumatologist can be advantageous, not only for the management of joint pain, but also because it was recently revealed that EDS-HT is related with a number of inflammatory and noninflammatory rheumatologic illnesses, including rheumatoid arthritis and fibromyalgia 9.

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Does cold weather make EDS worse?

Not only may it be more difficult to walk outside when there is ice on the ground, but a significant number of people who have Ehlers-Danlos syndrome as well as other rheumatological disorders such as arthritis say that the cold and wet weather makes the pain in their joints worse.

Does EDS cause joints to pop?

Easy dislocation of joints People who suffer from hypermobility are more likely to have easy dislocation of their joints. Joints that are dislocated are those that move out of their normal sockets. This might give you a great deal of discomfort. If you have Ehlers-Danlos Syndrome, dislocation is a very prevalent complication (EDS).

Does Ehlers Danlos get worse with age?

Many of the difficulties that are connected with EDS are progressive, which means that they become worse over the course of time. Kyphoscoliosis Ehlers-Danlos Syndrome (EDS) is a type of the condition that is characterized by severe and increasing curvature of the spine. EDS also goes by the name kyphosis and scoliosis.

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